Elsevier

Clinics in Chest Medicine

Volume 22, Issue 1, 1 March 2001, Pages 209-217
Clinics in Chest Medicine

Ethical Issues in the Chronically Critically Ill Patient

https://doi.org/10.1016/S0272-5231(05)70035-6Get rights and content

The chronically critically ill represent a unique subgroup of patients. They typically are seriously ill patients who are discharged from an intensive care unit (ICU) with multiple medical problems. They present a distinct spectrum of ethical dilemmas.

The definition of the chronically critically ill patient continues to evolve. For our purposes, these patients are defined best as those being discharged from the ICU earlier in the course of their disease than in previous years, in an effort to increase the availability of costly ICU beds.19 Hospitals have strived to reduce their sizes to remain financially competitive in the face of limited or fixed reimbursement. This financial reality has been largely responsible for the development of long-term acute care (LTAC) facilities to treat the chronically ill, as discussed in another article in this edition. It therefore seems that chronic critical care provided at LTAC facilities is an outgrowth of the financial constraints that are an everyday fact of life in medicine in the new millenium.9 This change in location of care does not seem to be based on pre-existing scientific data indicating that outcomes such as survival or quality of life are improved in the LTAC setting. By its nature, therefore, most of the current data generated about this group are, by definition, observational or retrospective. Review studies have shown this population has lower serum albumin levels, wider A-a gradients, and increased prevalence of ulcers.19 As a result, LTAC facilities are admitting more acutely ill patients, with resultant increases in morbidity and mortality.

Section snippets

OUTCOME AND QUALITY OF LIFE

The mortality of this unique patient population is high because of the number and complexity of comorbidities associated with the primary disease. It is difficult to compare outcomes among facilities because they are so heavily influenced by severity of illness. The statistics, nonetheless, are sobering. The reported 1-year survival for this population ranges from 23% to 49.5%.3, 14, 19 Almost 23% of patients in one study were readmitted to an acute care facility within 30 days of discharge,14

THE MORAL PRINCIPLES OF PATIENT CARE

The moral principles that govern the care of chronically critically ill patients are the same as those that apply to acute illness. In fact, some patients become chronically critically ill because decisions regarding withholding and withdrawing life-sustaining treatment could not be made during their acute illness. Perhaps, in such cases, this was the result of a failure to communicate or acknowledge the patient's prior wishes.21 The duration of chronic critical illness presents an opportunity

PRACTICAL SUGGESTIONS FOR DECISION-MAKING

The care of chronically critically ill patients presents the physician, the patient, their families, and society in general with a number of complex clinical and moral dilemmas. This complexity results not in simple choices of one treatment or another but in situations in which physicians' knowledge about what is best for the patient may be confused, conflicted, or not even available.13 There are no easy solutions for these dilemmas. Physicians must continue to assist their patients in making

SUMMARY

The chronically critically ill are a challenging population of patients. Their mortality rate is high and expected functional status is low. The physician responsible for the care of these patients often is conflicted because the gains experienced by these patients may be small or absent whereas the pressure by society to use medical resources better is great. This pressure leads to the need for making difficult decisions on issues ranging from the initiation of acute care to withholding and

References (22)

  • N. Daniels

    Four unsolved rationing problems: A challenge

    Hastings Cent Rep

    (1994)
  • Cited by (11)

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    Address reprint requests to Leonard Sicilian, MD, Pulmonary and Critical Care Division #369, New England Medical Center, 750 Washington Street, Boston, MA 02111

    *

    Medical Intensive Care Unit, New England Medical Center, Tufts University School of Medicine, Boston, Massachusetts.

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