BACKGROUND: People with cystic fibrosis face substantial physical, psychological, and
social challenges as they move into adolescence and adulthood, which are likely to impact on …

Objective To compare online and paper-based screening for depression and anxiety in adults
with cystic fibrosis (CF). Design and setting Cross-sectional study in CF clinics in Ireland …

Objectives Parents of children with cystic fibrosis (CF) are at risk of depression and anxiety
symptoms, yet, they are an under-researched group. This national cross-sectional study …

… Alistair J Duff2, … J Compassionate Health Care 2016;3:9.doi:10.1186/s40639-016-0025-8 …
J Compassionate Health Care 2016;3:3.doi:10.1186/s40639-016-0020-0 …

Developments in managing CF continue to drive dramatic improvements in survival. As
newborn screening rolls-out across Europe, CF centres are increasingly caring for cohorts of …

There remain many treatment uncertainties in cystic fibrosis (CF). With limited resources,
research should focus on questions which are most important to the CF community. We …

Specialised CF care has led to a dramatic improvement in survival in CF: in the last four
decades, well above what was seen in the general population over the same period. With the …

There is wide agreement on the benefits of NBS for CF in terms of lowered disease severity,
decreased burden of care, and reduced costs. Risks are mainly associated with disclosure …

In a recent James Lind Alliance Priority Setting Partnership in cystic fibrosis (CF) the top
priority clinical research question was: “What are effective ways of simplifying the treatment …

This review focuses on adherence in cystic fibrosis (CF), and the factors known to influence
it. In particular, it discusses the importance of effective communication in clinical settings and …