Evaluation of a short form for measuring health-related quality of life among pediatric asthma patients☆,☆☆,★
Section snippets
METHODS
The purpose of this study was to (1) use stepwise analysis to derive a shorter questionnaire from the original long-form questionnaire and (2) determine the tradeoff in precision between the long- and short-form surveys.
RESULTS
One hundred eighty-one patients ranging from 4 to 14 years old with a mean (SD) age of 9 (3) years were enrolled. Patients were mostly white (78.9%) and male (60.7%) and had asthma for an average of 5 years. Respondents were mostly female (88.3%), biologic parents (93.9%), and currently working outside the home (70.7%) or full-time homemakers (23.6%). Sixty-three percent of the patients had FEV1 ≥70%, 9% of the patients had FEV1 50% to 69%, and 28% had FEV1 <50%. The mean percent predicted FEV1
DISCUSSION
A large number of patients diagnosed with asthma have episodes when the disease is not well controlled in spite of the observation that these patients are receiving treatment for their disease. Because of this, these patients may have wide-ranging effects on their daily functioning and well-being. Although functioning and well-being may be the most important outcome of medical care from a patient perspective, clinicians may be less aware of important changes in a patient’s functioning.31 Thus
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2022, Contemporary Clinical TrialsCitation Excerpt :Child-caregiver dyads completed surveys at the time of enrollment (baseline), and at 3, 6, and 12 months after enrollment. These surveys assessed sociodemographics, quality of life (measured by validated questionnaire [27]), and asthma health outcomes based on validated measures including asthma symptoms (measured by the Asthma Control Test [25]), spirometry (measured using portable EasyOne spirometer), asthma-related emergency room visits, hospital admissions, and oral steroid courses (by caregiver report and medical record review). All assessments were performed remotely with the caregiver/child, except spirometry was conducted at school in the school health office.
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2017, Journal of PediatricsCitation Excerpt :ARQoL is an 8-item, asthma-related quality-of-life instrument including daytime and nighttime symptoms. Quality-of-life scores were summed and calculated as a percentile as described by Bukstein et al, where the greater the score, the better the quality of life.27 Both questionnaires were translated into Spanish by the translation department of our hospital and were used in a previous study of our group.30
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Supported by the Integrated Therapeutics Group Inc, Kenilworth, NJ.
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Reprint requests: Margaret McGrath, MS, Covance Health Economics and Outcomes Services Inc., Suite 200 East, 1100 New York Ave, NW, Washington, DC 20005.
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