Abstract
The Cystic Fibrosis Foundation is a voluntary, nonprofit, health organization whose mission is “to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease.” While substantial progress has been made, as evidenced by a marked increase in the median predicted age of survival, much work remains to be done. Ongoing medical programs and activities of the Cystic Fibrosis Foundation, which span basic science, drug discovery, drug development, clinical care, patient education, and advocacy, will be described in this article. The key role of respiratory therapists in the cystic fibrosis community will be highlighted.
- cystic fibrosis
- drug discovery
- clinical trials
- quality of health care
- registries
- health services accessibility
- respiratory therapy
Footnotes
- Correspondence: Bruce C Marshall MD, Cystic Fibrosis Foundation, 6931 Arlington Road, Suite 200, Bethesda MD 20814. E-mail: bmarshall{at}cff.org.
Dr Marshall presented a version of this paper at the 43rd Respiratory Care Journal Conference, “Respiratory Care and Cystic Fibrosis,” held September 26-28, 2008, in Scottsdale, Arizona.
- Copyright © 2009 by Daedalus Enterprises Inc.